Monday, May 20, 2013

Hidradenitis 2: The Ugly continues

Please read Hidradenitis first as this is just an update.

So what had happened was....

The medication they first tried me on got me sick.

My side effects: I dealt with the dry skin. I dealt with the dandruff. I dealt with the red and orange pee and poop. I dealt with the constant thirst. I dealt with everything tasting like metal. I said to myself that it would be worth it. Then my back started acting up and I was stiff in all my joints. The stiffness got worse and I was constantly cracking my knuckles and trying to stretch away the... pain. I woke up in  the morning and almost fell over getting out of bed. My hands hurt enough that it was difficult to brush my teeth. I popped six motrin and went to work. Called the doc. She told me to stop taking them. That if the side effects were this severe two weeks in, I would only deal with more severe side effects for being on it another 8 weeks. I'm angry and upset since the meds were working on my skin. For the first time in years, I don't have an open sore. I was so hopeful. Now it's back to the doc on the 15th for a new and different med.
 Within 3 days of being off the meds, my joints felt absolutely fine again.
Now I'm on doxycline and switching the topicals to every other day instead of daily. Only one inflamed area became an issue and I had a shot of cortisone today to take it down a notch. Two months until my next appointment.
Keeping on, keeping on.


  1. I'm so sorry to hear about all of this. I hope with all my heart that the doctors can find you some relief soon.

  2. They have. One active spot is like a miracle. I was living with 3 spots coming up and one burst and open at a time. Antibiotics for another 4 months and I might get totally clear again. The bad side effects have completely gone.